Let me start by saying that everyone that went to Roth was required to wear a uniform which consisted of a white shirt and navy blue pants. With my type of cerebral palsy I can not feed myself, so an aide had to feed me. One year that was a problem. One day we all went to lunch and I told the aide he had to feed me. He told me “you either eat it or wear it!”
After he saw I could not do it he started to feed me, but he gave me such big bites that it was falling out of my mouth and it got on my shirt and all over my face. That day we had spaghetti and meatballs and here I am with a white shirt on that was a total mess that I had to wear the rest of the day. How do you think I felt?
When I got home that day my grandma saw how I looked and I told her what happened. She was not happy at all. That very same day she called the school and setup a meeting with me, grandma, my teacher and the aide. In the beginning the aide could not understand why we were having the meeting, but when we started talking he knew what it was about. My grandma said “how would you feel if your kid came home with food all over them?” He said, “not very good.” After that, we did not have any more issues with him.
A lot of people think when you have cerebral palsy that you don't want to look your best. That is not true. That is why you have to speak up. Have a nice day everyone.
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